My Records, My Life, My Med.

www.mymed.tech

I wasn’t myself. I refused to be anyone else.

Tedium lead to despair that led to depression. How could I possibly live the life I wanted when I couldn’t even stay awake? I accepted a summer internship at Google fully aware that the person whose resume they accepted was slowly being eaten away. I couldn’t face the eventuality of my discovery. I would attend my classes, as energetic and participatory as ever, only to collapse in the bathroom, paralyzed and spasming from the overexertion.

Every doctor I visited spent most of the visit in front of a computer, making notes, recording details, looking up results, yet on my end, it was all relegated to an ever increasing paper Everest.

I began attempting to scan documents as much as possible. A child of silicon valley in 1999, I wasn’t accustomed to having important pieces of paper. Much less piles of them. But I was fatigued, increasingly prone to episodes of confusion, and often in far too much pain during doctors appointments to take note of what was happening, much less deal with paperwork. My childhood medical records and details from the US never made the trip at all, relayed only me and my mothers recollections of my struggles with TMJ and endless colds and flu’s in my Junior and Senior years of High School.

“God damn it! I could write the software to keep track of this sh*t myself. Why can’t I just download something to take care of this already?”

Months of struggle, and a specialist visit halfway across the world later, I was finally on the road to recovery. I started to think I owed it to myself to help my prior self. Even with a preliminary diagnosis of Behcet’s disease, migraines and fibromyalgia, I still had piles of doctors appointments to get through, every one starting with a long discussion of history and records. There was no standard much less highly successful treatment to recommend. It would me months more of trial and error to resume something of a normal life. I decided to make use of my Usability course in a way that might be just a bit more beneficial than a degree credit. I put together a design portfolio for a medical records application MyMed and committed to making it a reality.

No doctor will ever know a patients case as well as the person living it.

No doctor will ever know a patients case as well as the person living it. There are symptoms of my illness I will probably never think to mention to a doctor because they just seem irrelevant. It is only with control and access to my own medical records, the ability to take it with me as I live my life, and the ability to see the trends beyond a few consultations or a half hour appointment that I will be able to make a life that works for me. If MyMed allows just one other person to have that ability, if MyMed gives me that ability, it will be worth it. I thank my incredible team of friends in the tech and disability community helping me to make this dream a reality. I thank the Behcet’s disease community to reaching out to make this application work for all cases, not just my own. And perhaps, in a twisted sort of way, I thank my disease for giving my skills in technology a purpose far more important than video games and websites.

--

--

Get the Medium app

A button that says 'Download on the App Store', and if clicked it will lead you to the iOS App store
A button that says 'Get it on, Google Play', and if clicked it will lead you to the Google Play store
Samantha Lincroft

Samantha Lincroft

7 Followers

A student at Wellesley College and Monash University studying CS with an interest in math, philosophy, disability advocacy, and social entrepreneurship.